While we lived in Pacifica, Mr. found a great place to take Monster horseback riding (http://www.halleckcreekranch.org/). I've posted a video from there. The folks there were awesome as were the horses. Monster enjoyed it and during his time there he learned how to wear a helmut and started wearing goggle while swimming. The price was perfect (free).
So one of the things we needed to find when we moved out here was a new place to take Monster riding. Mr hit one out of the ball park with this one.
He found a fantastic facility in Exeter called Angels on Horseback. This place was amazing.
It was a hot/humid day, and Monster was already a bit cranky. When we got there, there was a simulator (The call it an Equicizer, from their website: "The Equicizer, named Oreo, is a mechanical horse which perfectly simulates riding a live horse) That Monster got right on. While on this thing, we put a safety belt on Monster (this dohickey that went around his waist that the volunteers could hang on to to prevent him falling) which he had never worn before and which he wasn't very happy to wear. On top of that, we tried to put on his helmet. He hadn't been on a horse in a few weeks, but we had been taking him bike riding to keep him use to wearing a helmet. Even so, Monster wouldn't let me put the helmet on him for more than a few seconds (literally 2 seconds and then he would push it off). I was getting pretty apprehensive about things at this point; I mean, he has had a lot of changes in his life and he hasn't really gotten his sea legs, so to speak. However, this is when Mr. really shines, in my opinion. He has such a good feeling for how far we can push Monster. I'm a lot more skittish than he is and will back off faster.
If we had followed my instincts, we would have missed a fantastic experience today. I doubt I can fully describe what a wonderful place and experience this was for us. Both Mr and I were fighting back tears, the good kind.
But I'm getting ahead of myself, a bit. From the start, he was trying to take his helmet off. He really didn't want his helmet on. He really, really, REALLY didn't want his helmet on. He was crying, biting his hand, trying to take the thing off while we got him set up on the horse. The volunteers were absolutely fantastic about re-directing his hands back to the handles on his saddle. So his first ride began with him being lead tearfully off on Taz.
At Halleck Creek, a volunteer would lead Monster around the grounds a bit. A pleasant afternoon ride. Angels seems, to me, the next step. This ride is not around beautiful ranch grounds, but through a series of activities. First, they took Monster to a mailbox where he opened up the box and took out a magazine which he then carried to the next mail box, where he put it in (and raised the little flag thingie). Next, he got to play basketball from the horses back (see above), weave through poles, placing hula hoops around them, threw bean bags, etc. It was a complete therapy session! He had to reach, stretch, speak (answer questions), use different textured balls-OT, ST and hippotherapy all in one.
And this was all volunteers! Wonderful, knowledgeable, patient volunteers.
This will sound trite and cliched, but they really were Angels!
The drama, trauma and hilarity of raising a child with autism while dealing with life's other little issues, like unemployment.
Saturday, August 15, 2009
Wednesday, August 12, 2009
Bad Mommy-I go back to work
Since the move, Monster has had two huge problems.
1. He hates to go to bed. We've had sleep issues in the past, really horrific battles at bedtime, which have gotten much better recently (before the move). Some days are better than others, but it's no where near as good as it was before the move. He tries to be charming, he gets very wired. He does whale song (a series of vocalizations he knows makes me crazy). I watched him the other night start whale song every time he would doze off a bit. I suspect it is a fear of going to sleep not knowing what changes will result when he wakes. Some of it is the weather (hot/humid, loud air conditioning); Some of it is just the strangeness of a new place.
2. Clinginess and staying home. He has always been fairly well traveled-it was nothing for us to drive an hour and a half for him to go to 6 flags; heck his horseback riding was an hour+ from our house, no sweat. Since we've been here, he doesn't like to leave the house much. I suspect this is because he is still scared that we are going to uproot him again. He is both trying to stick to what he considers known and his as well as preventing another upheaval by not leaving. Before the move, he was sleeping part of the night in his own bed and even after he climbed into mine, he would sleep a part from me. now, he is back to my bed completely and attached to me like iron on magnetite (geek reference). The clinginess is tough for me. After over 6 years of it, I'm extremely touched out. I'm tired of sleeping with him on top of me. I have pinched nerves in both of my shoulders that result in me waking up with numb hands, my back is always out of wack.
In addition to the move anxiety, I started back to work. After having Mommy home for the past 4-5 weeks, Mommy is gone all day (leaves before he gets up and gets home an hour before bedtime). Tonight, he wouldn't even look me in the eye. We sat for about 15 minutes, me holding him on my lap asking him to look at me (which usually gets him to look me in the eye) before he would look up and he only did that because I told him he couldn't play on the computer until he did. I should have known that was coming, he turned his back on me when I took over his bath time.
This is increasing both the bedtime problems and the clinginess. When he was much younger, he would make me sit on the couch (if I got up, he would lead me back and push me down or meltdown if I didn't) and then stand in front of me with his back turned when I would get home from work. He has never liked me working, but we've always liked to eat and sleep under a roof, so off to work I go (not to mention I love my work).
All of this also makes Mr's job harder-in addition to him dealing with setting things up here regarding services, school, activities, etc.
His language, for the most part, still remains pretty good. He is now telling us when he has a bad tummy or an owie (which he has many of these days because of rough play). He even asked for owie medicine tonight (though he wouldn't take it). I try to hold on to the fact that though he may retreat more often than we would like into his Cartoon world, he reciting things out loud to us, which suggests a confidence in his own speaking ability.
Things are going to get worse, before they get better, but I have to believe they are going to get better.
How does one learn patience?
1. He hates to go to bed. We've had sleep issues in the past, really horrific battles at bedtime, which have gotten much better recently (before the move). Some days are better than others, but it's no where near as good as it was before the move. He tries to be charming, he gets very wired. He does whale song (a series of vocalizations he knows makes me crazy). I watched him the other night start whale song every time he would doze off a bit. I suspect it is a fear of going to sleep not knowing what changes will result when he wakes. Some of it is the weather (hot/humid, loud air conditioning); Some of it is just the strangeness of a new place.
2. Clinginess and staying home. He has always been fairly well traveled-it was nothing for us to drive an hour and a half for him to go to 6 flags; heck his horseback riding was an hour+ from our house, no sweat. Since we've been here, he doesn't like to leave the house much. I suspect this is because he is still scared that we are going to uproot him again. He is both trying to stick to what he considers known and his as well as preventing another upheaval by not leaving. Before the move, he was sleeping part of the night in his own bed and even after he climbed into mine, he would sleep a part from me. now, he is back to my bed completely and attached to me like iron on magnetite (geek reference). The clinginess is tough for me. After over 6 years of it, I'm extremely touched out. I'm tired of sleeping with him on top of me. I have pinched nerves in both of my shoulders that result in me waking up with numb hands, my back is always out of wack.
In addition to the move anxiety, I started back to work. After having Mommy home for the past 4-5 weeks, Mommy is gone all day (leaves before he gets up and gets home an hour before bedtime). Tonight, he wouldn't even look me in the eye. We sat for about 15 minutes, me holding him on my lap asking him to look at me (which usually gets him to look me in the eye) before he would look up and he only did that because I told him he couldn't play on the computer until he did. I should have known that was coming, he turned his back on me when I took over his bath time.
This is increasing both the bedtime problems and the clinginess. When he was much younger, he would make me sit on the couch (if I got up, he would lead me back and push me down or meltdown if I didn't) and then stand in front of me with his back turned when I would get home from work. He has never liked me working, but we've always liked to eat and sleep under a roof, so off to work I go (not to mention I love my work).
All of this also makes Mr's job harder-in addition to him dealing with setting things up here regarding services, school, activities, etc.
His language, for the most part, still remains pretty good. He is now telling us when he has a bad tummy or an owie (which he has many of these days because of rough play). He even asked for owie medicine tonight (though he wouldn't take it). I try to hold on to the fact that though he may retreat more often than we would like into his Cartoon world, he reciting things out loud to us, which suggests a confidence in his own speaking ability.
Things are going to get worse, before they get better, but I have to believe they are going to get better.
How does one learn patience?
Sunday, August 9, 2009
The Move, Part 3
Sorry for the interruption, but we only have one real computer (it's pretty tough to blog from the iPhone, though I've done it in the past) at the moment and Monster is having a blast playing games on it.
We had thought we had a place all set up for us in RI before we ever left CA. However, the owner decided he didn't want a dog on the property and Mr. had the un-enviable job of finding us a new place to live in little to no time. He did spectacularly-he found us a rather quirky place not to far from the water. It has a finished basement (with kitchen and spare bedroom), a huge deck and a beautiful open backyard that came with a tree swing and swing set (that we have added a slide to since moving in).
Move-in day was extremely hot and humid. We started out late; both the owner and the moving van was here before us. Monster was a trooper-playing in the house and deciding on the downstairs as "his" place for the day. He also fell in love with the outside swing. IN fact, he has tried to sneak out several times (and succeeded a few heartstopping instances) in order to get back there and play. We seem to spend a lot of time back there in the mornings rather than his playing with DVDs.
Since moving in, Monster has had a difficult time of things. As usual, it manifests in his bedtime routine and sleeping habits. He has never been an easy kid when it came to going to bed. He and I have had some epic battles in the past when it has come to sleep. Recently (as in before the move) his nighttime problems seem to have subsided quite a bit. However, the move seemed to have instilled a whole new host of problems.
One thing Monster has been doing lately, which is both pretty remarkable and difficult to deal with. Monster has taken to reciting entire Go Diego Go episodes. I realize that in the scheme of Autism, that's fairly typical, but for Monster, he hasn't done this before (partially because he couldn't or wouldn't speak) and it is pretty cool to hear him utter entire sentences, even if he is just is reciting something. On the other hand, this is just another way for him to tune out the world. He seems to start reciting things when he is either upset, or overwhelmed or doesn't want to listen to us, which these days is often.
I realize that set backs are going to happen, especially when I've completely turned his world upside down. So I'm trying to look on the bright side of things. He has found another way to check out from us, but at least he is speaking when he does it.
Hopefully he will settle in more and get more comfortable with the new place and we can build on this.
We had thought we had a place all set up for us in RI before we ever left CA. However, the owner decided he didn't want a dog on the property and Mr. had the un-enviable job of finding us a new place to live in little to no time. He did spectacularly-he found us a rather quirky place not to far from the water. It has a finished basement (with kitchen and spare bedroom), a huge deck and a beautiful open backyard that came with a tree swing and swing set (that we have added a slide to since moving in).
Move-in day was extremely hot and humid. We started out late; both the owner and the moving van was here before us. Monster was a trooper-playing in the house and deciding on the downstairs as "his" place for the day. He also fell in love with the outside swing. IN fact, he has tried to sneak out several times (and succeeded a few heartstopping instances) in order to get back there and play. We seem to spend a lot of time back there in the mornings rather than his playing with DVDs.
Since moving in, Monster has had a difficult time of things. As usual, it manifests in his bedtime routine and sleeping habits. He has never been an easy kid when it came to going to bed. He and I have had some epic battles in the past when it has come to sleep. Recently (as in before the move) his nighttime problems seem to have subsided quite a bit. However, the move seemed to have instilled a whole new host of problems.
One thing Monster has been doing lately, which is both pretty remarkable and difficult to deal with. Monster has taken to reciting entire Go Diego Go episodes. I realize that in the scheme of Autism, that's fairly typical, but for Monster, he hasn't done this before (partially because he couldn't or wouldn't speak) and it is pretty cool to hear him utter entire sentences, even if he is just is reciting something. On the other hand, this is just another way for him to tune out the world. He seems to start reciting things when he is either upset, or overwhelmed or doesn't want to listen to us, which these days is often.
I realize that set backs are going to happen, especially when I've completely turned his world upside down. So I'm trying to look on the bright side of things. He has found another way to check out from us, but at least he is speaking when he does it.
Hopefully he will settle in more and get more comfortable with the new place and we can build on this.
Subscribe to:
Posts (Atom)